Lipedema – The Pandemic of an Unknown Disease
Pandemic is a modern word with regard to the past. Nowadays, among other things, we can talk about a pandemic of obesity, especially in civilized countries of the world – EU, USA, Australia.
Not all obesity is the same. Obesity is, among other things, defined by the general measure called Body Mass Index (BMI), where ranges are established according to which it is determined whether it is obesity or not. This basic division also includes pathological fat accumulation – so-called Lipedema.
The term Lipedema is well known in German-speaking countries, where especially in Germany we can speak of a Pandemic, both based on absolute numbers of the affected population and because this terminology has been accepted by the professional community as a so-called nosological unit, meaning as a diagnosis (like typhus), although it is not yet included in the International Classification of Diseases.
This results in the general population being confronted with this diagnosis and seeking examination by specialists for subsequent treatment. In our regions – Czech Republic, Poland, Hungary – this “concept” is more or less unknown both to professionals and the general public. The further east, the less this diagnosis is known (also because it affects Asian populations only minimally).
It is unknown to obesity specialists (with rare exceptions) as well as to radiologists who confirm this diagnosis and its stages through ultrasound examination. (Of course, MRI is also highly diagnostic but unnecessarily expensive)
What is Lipedema:
It is abnormal accumulation of pathological fat in predilection sites, mainly on the lower extremities and in some cases also on the upper extremities. It does not affect the palms or soles of the feet. It is a generalized fat disorder.
Many sources indicate that it is a type of inflammatory disease caused by enlargement – hypertrophy and multiplication – hyperplasia of fat cells. The cells are arranged in so-called convolutions (bundles) and are located in connective tissue, something like a natural sponge where cells are placed in the openings.
Since the cells are large, the tissue rubs against itself and aseptic inflammation occurs, resulting in the formation of fibrous tissue – essentially scar tissue. Therefore, lipedema fat tissue is significantly harder compared to ordinary fat tissue. For this reason, the tactics of invasive treatment have changed, moving from using water jet to ultrasound in an invasive manner with the VASER device.
It is necessary to distinguish Lipedema and Lymphedema:
Lipedema involves pathological fat accumulation. Lymphedema involves pathological fluid retention in certain parts of the body.
Lipedema is always symmetrical!!! Lymphedema is asymmetrical!!!
Stage IV Lipedema may be combined with Lymphedema.
It affects exclusively women and is a metabolically, genetically, and especially hormonally conditioned disease.
Typical symptoms of Lipedema are:
- spontaneous pain in affected areas and
- body dysmorphia – severe body asymmetry. Women often exercise, maintain a healthy lifestyle, and cannot lose weight from problematic areas, i.e., lower extremities.
- A major problem for women affected this way, besides pain, poor aesthetic appearance, high BMI,
- Chafing – intertrigo
- is also that they cannot buy ready-to-wear clothing. What “fits” on top doesn’t “fit” on their legs.
- Fatigue.
The result is very poor quality of life.
There are various classifications of Lipedema, stages and types of Lipedema
Stages of lipedema
Lipedema slowly worsens with time in many people. Lipedema stages include:
- Stage 1: Your skin looks normal, but you can feel something like pebbles under your skin. You can have pain and bruising at this stage.
- Stage 2: Your skin surface is uneven and may have dimpling that looks like quilted stitching, a walnut shell or cottage cheese.
- Stage 3: Your legs can look like inflated rectangular balloons and you have large folds of skin and fat. Fat on your legs may stick out, making it hard to walk.
- Stage 4: You have lipedema and lymphedema at the same time.
Types of lipedema
You may have more than one type of lipedema at a time, depending on where you have symptoms. Types of lipedema include:
- Type I: Fat is between your belly button and your hips.
- Type II: Fat is between your pelvis and knees.
- Type III: Fat is between your pelvis and ankles.
- Type IV: Fat is between your shoulders and wrists.
- Type V: Fat is between your knees and ankles.
Currently, work is being done on classifying Lipedema in combination with morphology and functional aspects with regard to possible treatment.
Prevalence of Lipedema:
There are various statistics citing different numbers for Lipedema prevalence in the population, but several lean towards the figure of 10%. This means that every 10th woman out of 100 women is affected by Lipedema. This means that in Germany, over 8,000,000 women (8 million) are affected. In total, in German-speaking countries, it’s around 10 million women. In the Czechoslovak population, it’s approximately 1.5 million women.
The problem in Czechoslovakia is that people know almost nothing about this disease. They observe changes in themselves, cannot dress properly, have pain especially in the lower extremities, their overall appearance bothers them, diets and exercise don’t work or work only minimally. People are frustrated, depressed, “anxious,” irritated, don’t perform adequately at home or at work. Performance and self-confidence drop significantly, which subsequently leads to many psychological problems mentioned above.
In summer, it’s best possible to see how many women suffer from Lipedema. According to my experience, without statistical proof, it’s almost every 6-8th woman who has visibly apparent Lipedema of various stages and types.
Therefore, it is essential to raise awareness about this “Disease” both among professionals and the general public, so we can help these people, thereby improving the physical and especially psychological health of both communities.
Is Lipedema treatable?
Right at the beginning, it’s necessary to say that Lipedema as such is not yet curable. However, it must be said quite emphatically that it is not a fatal disease and most importantly, its impact on life can be mitigated. Currently, we have technologies that can significantly improve the quality of life for Lipedema patients.
Lipedema treatment requires a comprehensive approach
Conservative treatment
- Anti-inflammatory diet with significant limitation especially of simple sugars, mainly sucrose – regular sugar and foods containing it. Reduction of polysaccharide intake – pasta, bread. Sugar acts, simply put, as fuel for inflammation, and such inflammation occurs in fat tissue affected by Lipedema.
- Anti-inflammatory medications
- Natural extracts like Turmeric
- Non-invasive technologies – manual lymphatic drainage massage, elastic stockings or leggings made specifically to reduce Lipedema symptoms. Theoretically pneumatic stockings.
- Physical activity, aerobic training
Invasive treatment:
Should be initiated when conservative treatment that lasted at least 6 months to 1 year fails. Currently, there is a gradual transition from using water jet to more modern technologies like ultrasound (VASER).
Ultrasound was originally developed for liver and brain surgery because it minimally damages vessels and nerves, thereby significantly reducing bleeding, to which Lipedema fat tissue is very prone because it is highly vascularized.
Advantages of ultrasound liposuction over WAL
- Time factor – operation duration is significantly shortened compared to water jet due to fibrosis, scar tissue that characterizes Lipedema. Ultrasound very effectively breaks down scar-fibrous tissue. This shortens the patient’s anesthesia time
- Significant reduction in blood loss with much faster surgical procedure
- Reduces, though doesn’t completely eliminate, the possibility of creating irregularities. Although limbs affected by Lipedema are primarily – initially uneven.
- Operation acceleration
- Preservation of the so-called fibroseptal network, which is tissue between skin and muscles, responsible for skin laxity.
In liposuction itself, the phenomenon of “sagging” skin is precisely what threatens. FSN is made of collagen, a protein that responds very well to heat and remains after fat suction from this “network,” “grid.”
Maintaining quality FSN is 1/3 of success in skin tightening to the muscle skeleton and thus body contouring, 1/3 lies in radiofrequency-guided plasma current technology of noble gases Argon and Neon, 1/3 remains with the patient – collagen quality, postoperative care, etc.
Target organ – fibroseptal network
The next step is fat removal using vibrational liposuction, which is gentle to tissues and perfectly helps remove fat cells loosened by Vaser.
Finally, it’s necessary to tighten the loose skin – precisely through the application of high heat to collagen fibers – Fibroseptal network – FSN. Ionized noble gas = Plasma is used for this, either Argon or Helium.
Collagen is heated for a short time to a temperature of 85°C. Normally, 65°C is sufficient for collagen contraction, which is the denaturation temperature of proteins. In the case of plasma, however, this is milliseconds and the area is immediately cooled afterward. The plasma current is selectively directed to collagen fibers because the first place this current “goes” is the location of lowest resistance, which is actually collagen. Then follows fat, muscles, etc.
This is a huge advantage over Laser, where thermal energy spreads everywhere around the application cannula and “burns” everything around. Today, Laser liposuction has been completely abandoned!!!!!
The result is tightening and adherence of otherwise sagging skin to the muscle skeleton. However, it should be noted that even plasma cannot work miracles, and where skin is very loose and damaged by processes of weight gain, weight loss, previous liposuction procedures, sun exposure, sometimes the only option is “cutting off” this excess skin.
Postoperative care:
- Antibiotics, thrombosis prevention medications, pain medications, and anti-swelling medications.
- As soon as possible, it’s necessary to undergo Manual lymphatic drainage massage performed by a trained physiotherapist. At least the first 10 days daily, then at least 2x per week.
- Hyperbaric chamber – significantly accelerates recovery and healing. It’s beneficial to use HC even before surgery 1-2x. This further improves post-surgical condition, accelerates recovery. Postoperative complications are reduced, especially circulation disorders after Body contouring, after abdominoplasties, etc.
- No fitness exercise for at least 8 weeks.
- Wear special Lipedema elastic garments 23/7.
- Walks, Nordic walking.
- No swimming for at least 8 weeks.
MUDr. Peter Chovan
Premier Clinic Prague